Last Updated: September 20, 2026

Beneficiary Control of Medical Information

At NAME IT Registry, we recognize that your medical information is deeply personal and sensitive. You, the beneficiary, maintain complete control over what medical information is shared through our platform.We do not access, store, or distribute your medical information without your explicit consent and direction.

You have the right to:

Decide what medical information to include in your service Registry
Choose who can view your Registry and medical information
Update or remove medical information from your Registry at any time
Delete your Registry and all associated information entirely

Information You Share

NAME IT Registry serves as a platform to connect beneficiaries with services and support. Any medical or personal information shared through the platform is done so at your discretion. We provide the tools for you to create and manage your Registry, but you control the content.

Platform Usage and Data

We collect minimal technical data necessary to operate the platform, including:

Account credentials (email and password)
Profile information you choose to provide
Technical data such as IP address and browser information for security purposes

This data is used solely to provide and improve our services.

Limitation of Liability

NAME IT Registry is a platform service only. We provide tools for beneficiaries to create service registries and connect with donors and businesses, but we do not:

Provide medical advice or services
Verify or validate medical information shared by users
Guarantee the accuracy of information provided by beneficiaries, donors, or businesses
Control the quality or delivery of services provided by third-party businesses
Manage or be responsible for crowdfunding transactions between parties

NAME IT Registry shall not be held liable for:

Any medical outcomes or decisions made based on information shared through the platform
The accuracy, completeness, or reliability of any medical information provided by users
Any unauthorized access to or disclosure of your information resulting from your sharing decisions
Services provided by third-party businesses listed on the platform
Crowdfunding arrangements between beneficiaries, donors, and businesses
Any disputes between users of the platform
Any damages arising from your use of the platform or reliance on information found therein

Your Responsibility

By using NAME IT Registry, you acknowledge and agree that:

You are responsible for the accuracy of information you share
You are responsible for decisions about what information to disclose
You should consult with qualified medical professionals for medical advice
You use the platform at your own risk

Security

While we implement reasonable security measures to protect your account and the platform, no system is completely secure. You are responsible for maintaining the confidentiality of your account credentials and for all activities that occur under your account.

Changes to This Policy

We may update this Privacy Policy from time to time. We will notify users of significant changes by posting the new policy on this page with an updated "Last Updated" date.

Contact Us

If you have questions about this Privacy Policy, please contact us at the information provided on our Contact page.